Fell Friday after a great evening with Pam, yelled and laughed - enjoyed the rest of the weekend with friends. Went to a ALS support group today and even with good intentions walked away with a clear picture of truth.
Have been working hard to stay positive for anyone who reads this, so you want to come back - well today will be different, today will be truth.
Since falling Friday the realization of the illness has set in. As much as you want to think it's OK - it's not. My right side which has been carrying me is going and it may seem fast but I have been able to make it this far by adapting and using all my physical and mental strength. Going to the meeting we talk about reality, the inevitability of this illness and it hits home.
We had discussions like these: have your emergency papers in order, body lifts for someone to move you, hot spots while laying, feeding tubes, no movement, and a host of others.
With the changes the next topics will be "share the care" a book written to help those with tough illnesses. The support has been unbelievable but the support tomorrow will be even more important. This is a huge challenge for me and anyone who knows me but by working together we all can get through this and minimize the hurt.
Truth is - this is a tough draw and your help and support have been instrumental in keeping the positive attitude.
Take from this a reality check, take from this hope, take from this we are better for knowing each other - take from this "the truth"...